The Pilot Assessment and Capacity Evaluation (PACE) report represents a major milestone in Children’s Hospice and Palliative Care Coalition’s efforts to implement California’s new Medi-Cal Pediatric Palliative Care Benefit in 13 designated pilot counties and to the support the development and institution of a pediatric hospice concurrent care policy as mandated under the 2010 Affordable Health Care Act. Conducted to fill a crucial knowledge vacuum, PACE identifies a contingent of home health and hospice programs that continue to provide pediatric services in their communities despite the crippling recession. PACE also gauges the potential for additional health care resources to extend their services to children.   You can download a pdf of the PACE report by clicking here.

Children’s Hospice and Palliative Care Coalition would like to extend their deepest appreciation to the California HealthCare Foundation, which underwrote this project in its entirety. We would also like to thank the Department of Health Care Services and California Children’s Services for their continued partnership, and to all of the providers who participated in PACE. Additionally, CHPCC extends its appreciation to Betty Ferrell, Ph.D., FAAN City of Hope Professor,Nursing Research and Education, for her assistance in the development of the PACE survey content; to Trisha Rorabaugh,Rorabaugh Design Studio, for creation of the electronic survey and database; and Lisa Simonson Maiuro, MSPH, PhD, Researcher, Health Management Associates, for her assistance with PACE evaluation processes.