Southern California Pediatric Palliative Care Network
The Southern California Pediatric Palliative Care Network (SCPPN) is a collaborative network dedicated to improving the quality of life and quality of care for children with life-threatening conditions by promoting excellence in compassionate, family-centered palliative care. We meet every other month at various locations around Southern California working together to ensure that children have access to outstanding medical care that meets the needs of the entire family
Agenda and Materials for March 23rd meeting with San Diego Collaborativ
- Partners for Children (working title under review) waiver overview: A Historical Perspective Lori Butterworth & Devon Dabbs, Children’s Hospice and Palliative Care Coalition (CHPCC)
- Defining Hospital/Community-based Palliative Care – Leslie Adams, MSW, PPC Consultant, CHPCC and former Pediatric Palliative Care Consultant, Seattle Children’s Hospital
- Collaborative Partners – Developing the San Diego Model – Who can and might participate – Gay Walker, RN, Director, TrinityKids Care and Pediatric Palliative Care Consultant, CHPCC
- The Referral Process – flow chart – Jill M Abramson, MD MPH FAAP, Section Chief Program Development Section, Children’s Medical Services, DHCS
- Billing for services under the waiver – Jill M Abramson, MD MPH FAAP, Section Chief Program Development Section, Children’s Medical Services, DHCS
- Plan of Care for Waiver – Family-Centered Action Plan overview and discussion – Gay Walker, RN, and Leslie Adams, MSW (handouts will be provide
- waiver-info-sheet-sdhipm-s
- sdwaiverworkshop32309
- medicaleligibility
- power point waiver-teaching-short-rev210
- waiverccsnl040207
- benefit-attachment-2-19-091
- refer-enroll-flow-122091
- care-coordinator-21909
- ccsnl-sow-21909draft
- loc-revision-02-17-2009
- ppc-referral-form-draft
- f-cap-bi-weekly-review-form-eol-meeting-1-26-09
- f-cap-form-2-4-eol-meeting-1-26-09
- f-cap-encounter-form-eol-meeting-1-26-091
- f-cap-initial-assessment-for-services-eol-meeting-1-26-09
- f-cap-revisions-eol-meeting-1-26-09
- waiver-care-coordinator-roles-responsibilities-exerts-waiver-02-2009
- waiver-services-comparison-chart-w-vs-nw
Materials for March 6, 2009 Meeting at Children’s Hospital Los Angeles
Agenda
Southern California Pediatric Palliative Care Network (SCPPN)
Friday March 6th from 1 to 3 at CHLA
Agenda Items:
1) The new CHLA palliative care team will share with us about their program
2) Waiver Update-learn the latest from Sacramento along with the nuts and bolts of how the waiver will roll out.
3) Jack Morrison, Director of Home Care Services for Children’s Hospital of Central California and a leader in the Central California Collaborative will present an analysis of hospital vs. community palliative care costs.
Old Meeting Documents
Agenda for 6/27/09 meeting:
Powerpoint for 6.27.08 meeting
Minutes from previous meetings:
SCPPN Minutes 6.27.08
Upcoming Events
September 27, 2008 – Wishland Family Festival and Butterfly Release
Members:
Clarke Anderson, MD
Dept. of Pediatric Hematology/Oncology
City of Hope National Medical Center and Beckman Research Institute
Duarte, CA
canderson@coh.org
Jaime Andrews, RN
Pediatric Nurse
Cedars-Sinai Medical Center
Los Angeles, CA
jandrews08@yahoo.com
JoAnne Auger, RN
Supportive/Palliative Care RN Coordinator, Oncology
Children’s Hospital San Diego
San Diego, CA
jauger@rhcsd.org
Christy Beaudin, Ph.D., LCSW, CPHQ
Vice President, Chief Quality Officer
Children’s Hospital Los Angeles
Los Angeles, CA
CBeaudin@chla.usc.org
Kim Bower, MD
Medical Director
San Diego Hospice and Palliative Care
San Diego, CA
kbower@sdhospice.org
Barbara Britt, RN, MSN
Nurse Care Manager
Neural Tumors Program, Children’s Hospital Los Angeles
Los Angeles, CA
BBritt@chla.usc.org
Lori Butterworth
Co-Executive Director, Co-Founder
Children’s Hospice and Palliative Care Coalition / Partnering for Children
Watsonville, CA
lori@childrenshospice.org
Devon Dabbs
Co-Executive Director, Co-Founder
Children’s Hospice and Palliative Care Coalition / Partnering for Children
Watsonville, CA
devon@childrenshospice.org
Joyce Derrickson
Nurse Care Manager, Neural Tumors Program
Children’s Hospital Los Angeles
Los Angeles, CA
jderrickson@chla.usl.org
Jacqueline Drummond-Lewis
Children’s Hospital Los Angeles
Los Angeles, CA
JDrummondLewis@chla.usc.edu
Deborah Dunne
Chief Administrative Officer, VP Clinical Services
San Diego Hospice and Palliative Care
San Diego, CA
DDunne@SDHospice.org
Suzanne Engelder, MSW
Program Coordinator/Social Worker
St. Joseph Perinatal Comfort Care Program Community Education/St. Joseph Hospice
Orange, CA
Suzanne.Engelder@stjoe.org
Elana Evan, PhD
Clinical Psychologist/Program Coordinator,
Children’s Comfort Care Resource Program, UCLA Pediatric Pain Program
Los Angeles, CA
eevan@mednet.ucla.edu
Linda Gorman, RN, MN
Palliative Care Clinical Nurse Specialist
Cedars-Sinai Medical Center
Los Angeles, CA
Linda.Gorman@cshs.org
Kathleen Ingman, Ph.D.
Clinical Director, Behavioral Sciences
HOPE Program, Children’s Hospital Los Angeles
Los Angeles, CA
kingman@chla.usc.edu
Elizabeth Jenkins, RN
VITAS Hospice
Irvine, CA
elizabeth.jenkins@vitas.com
Michael Joseph, MD
Asst. Prof. of Anesthesiology and Pediatrics
Children’s Hospital Los Angeles
Los Angeles, CA
mjoseph@chla.usc.edu
James Keenan
Haven’s Heart
Signal Hill, CA
JSKeenan@HavenHealth.org
Kathleen Kelly, RN, BSN, OCN
Director
Southern California Cancer Pain Initiative, City of Hope National Medical Center
Duarte, CA
kkelly@coh.org
Catherine Klatzker, RN, CCRN
Pediatric Intensive Care Unit
Children’s Hospital Los Angeles
Los Angeles, CA
cklatzker@chla.usc.edu
Glen Komatsu, MD
Medical Director
Trinity KidsCare Hospice
Torrance, CA
Glen.Komatsu@providence.org
Tracy Kruger, RN, MSN, PNP,CPON
Pediatric Hematology/Oncology Case Manager
Kaiser Permanente Los Angeles Medical Center
Los Angeles, CA
Tracy.E.Kruger@kp.org
Carrie Langsam, RN, BSN
Ventura County, CA
csam549@sbcglobal.net
Katie Leyva, RN
Pediatric Oncology Nurse
Children’s Hospital of Orange County
Orange, CA
kleyva@choc.org
Randi McAllister-Black, Ph.D.
Psychologist and Prof. of Pediatrics Director, Internship Training Program
City of Hope National Medical Center
Duarte, CA
RMcAllister @coh.org
Scott and Suzanne Peterson
petersons2@sbcglobal.net
Lori Rabner, M.S.W.
Social Worker
Jonathan Jaques Children’s Center, Miller Children’s Hospital, Long Beach
Long Beach, CA
lrabner@memorialcare.org
Danielle Roubinov, BA
Staff Research Associate
Children’s Comfort Care Resource Program, UCLA Pediatric Pain Program
Los Angeles, CA
droubinov@mednet.ucla.edu
Lisa Schoyer, MFA
Chief, Family Support
Los Angeles County
Los Angeles, CA
lschoyer@ladhs.org
Gwynn B. Sullivan, RN, MSN
Director, Partner Programs and Services
National Hospice and Palliative Care Organization / Caring Connections
gsullivan@nhpco.org
Liz Sumner, RN, BSN
Palliative Care Program Coordinator
The Elizabeth Hospice
Escondido, CA
LHSumner@Elizabethhospice.org
Janet Thomas, RN, CMCN
Pediatric/PICU Case Manager
Kaiser Permanente Los Angeles Medical Center
Los Angeles, CA
Janet.C.Thomas@kp.org
Christy Torkildson, MSN, RN, PHN
National Director: Education, Research, Professional Relations
George Mark Children’s House
San Leandro, CA
torkc@sbcglobal.net
Candace Varner
Clinical Operations Manager
Trinity KidsCare Hospice
Torrance, CA
Candace.Varner@providence.org
Rose Virani, RNC, MHA, OCN
Senior Research Specialist
City of Hope National Medical Center
Duarte, CA
rvirani@coh.org
Gay Walker, RN
Program Development and Clinical Manager
Trinity KidsCare Hospice
Torrance, CA
Gay.A.Walker@providence.org
Joetta Wallace, MSN, RN, FNPC
Palliative Care Program Manager
Miller Children’s Hospital, Long Beach
Long Beach, CA
jdwallace@memorialcare.org
Terri Warren, MSW
Executive Director
TrinityCare Hospice
Torrance, CA
Terri.Warren2@providence.org