Northern California Collaborative for Pediatric Palliative Care (NCCPPC)The Northern California Collaborative for Pediatric Palliative Care (NCCPPC) is a collaborative professional group aimed at improving services by providing education and increasing awareness and advocacy for children with life threatening conditions and their families. We share information and resources related to providing excellent care for children with life-threatening conditions and have membership from throughout Northern California.
Meeting Agenda 7.14.08
Northern California Collaborative for Pediatric Palliative Care
Meeting Agenda, July 14, 2008
2:30 – 4:30
Pathways Hospice
585 North Mary Avenue, Sunnyvale, CA 94085
Opening remarks and introductions – Christy Torkildson and Joyce Shefren
Update on BEST – Lori Butterworth
o Role of the Collaboratives
o Development of the clinical support teams – REPs (Regional Educational Partners)
o Solicitation and Posting of Online Resources
F-CAP update – Christy Torkildson
Flow Chart – discussion – all
o Waiver referral and procedural process for moving children through enrollment, delivery of services, and off the waiver
Flow Chart for Waiver Admission
Education and Training opportunities – all
Members:
Sally Adelus, RN, DNSc
Executive Director
Hospice of the Valley
San Jose, CA
sadelus@hospicevalley.org
Trudy Anderson
Director of Nursing
Hospice of the Valley
San Jose, CA
tanderson@hospicevalley.org
Barbara Beach, MD
Medical Director
George Mark Children’s House/Comfort for Kids
San Leandro, CA
bbeach@georgemark.org
Alison Brooks, RN, MSN, CNS
Alta Bates Summit Medical Center
Berkeley, CA
brooka@sutterhealth.org
Ellen Brown, MD
Medical Director
Pathways Kids
Sunnyvale, CA
ebrown@pathwayshealth.org
Lori Butterworth
Co-Executive Director and Co-Founder
Children’s Hospice and Palliative Care Coalition / Partnering for Children
Watsonville, CA
lori@childrenshospice.org
Rebecca Case, RN
Clinical Resource Nurse
UC Davis Medical Center, Pediatric Intensive Care Unit
Davis, CA
rebecca.case@ucdmc.ucdavis.edu
Judy Citko, JD
Executive Director
California Coalition for Compassionate Care
Sacramento, CA
jcitko@finalchoices.org
Devon Dabbs
Co-Executive Director and Co-Founder
Children’s Hospice and Palliative Care Coalition / Partnering for Children
Watsonville, CA
devon@childrenshospice.org
Rowena DeMayo, RN, MSN
Primary Care
Hospice by the Bay
San Francisco, CA
rowenademayo@hotmail.com
Meghan Denzel, RN, FNP
Hospice Case Manager
Pathways Kids
Mountain View, CA
mmdenzel@hotmail.com
Tree Dunbar
Director of Children’s Services
Hospice Caring Project
Scotts Valley, CA
tdunbar@hospicesantacruz.org
Judith Dunlop, MDiv
Program Director
George Mark Children’s House
San Leandro, CA
jdunlop@georgemark.org
Jennifer Foreman, MD
Chief, Ambulatory Pediatrics
Santa Clara Valley Health & Hospital System
San Jose, CA
jennifer.foreman@hhs.co.santa-clara.ca.us
Heather Fox, LCSW
Clinical Social Worker
Children’s Hospital Oakland
Oakland, CA
hfox@mail.cho.org
Alice Fritz, RN, MS
Care Coordinator
George Mark Children’s House
San Leandro, CA
afritz@georgemark.org
Gay Gale, RN, MSN
Alta Bates Summit Medical Center
Berkeley, CA
ggale@comcast.net
Julie Good, MD, DABMA
Clinical Assistant Professor Pediatric Pain and Symptom Management
Lucile Packard Children’s Hospital
Palo Alto, CA
julieg@stanford.edu
Karen Heinrich
Founder and Executive Director
Moment by Moment Foundation
Alamo, CA
karenhenrich@pacbell.net
Nancy Iverson, MD
Physician
Comfort for Kids
niverson7@earthlink.net
Sharon Mills, FNP
Pathways Kids
Sunnyvale, CA
sharon_kay@sbcglobal.net
Julie Kennedy, RN, JD
Director of Nursing
George Mark Children’s House
San Leandro, CA
jkennedy@georgemark.org
Lynda Knight
lynda_pulpan@comcast.net
Robin Kramer, RN, MS, PNP
Program Coordinator, Compass Care, Pediatric Palliative Care Program
UCSF Children’s Hospital
San Francisco, CA
robin.kramer@ucsfmedctr.org
The Lee-Ribas Family
casalee-ribas@igc.org
Elizabeth Martin
Kaiser Oakland Medical Center
Elizabeth.C.Martin@kp.org
Fumiko Mato, MA, CCLS
Child Life Specialist, Hematology/Oncology
Children’s Hospital Oakland
fumikomato@aol.com
Margy Mayfield, RN, BSN
Director of Clinical Services
Coastal Kids Home Care
Salinas, CA
margy@coastalkidshomecare.org
Karen Nolan
Hospice of the Valley
San Jose, CA
knolan@hospicevalley.org
Chris O’Connor
Hospice of the Valley
San Jose, CA
chriso@hospicevalley.org
Tina Ratto
tina.ratto@ucsfmedctr.org
Rebecca Rice, MA, CCLS
Child Life Specialist, Hematology/Oncology
Children’s Hospital Oakland
Oakland, CA
rrice@mail.cho.org
Belinda Rosales-Webb
Lucile Packard Children’s Hospital
Palo Alto, CA
belindar@stanford.edu
Bonnie Safine, RN, DNSc
Director of Clinical Services
Hospice of the East Bay
bonnies@hospicecc.org
Sophia Schultz, RN
Nurse Care Coordinator
Partnership for Children
Watsonville, CA
sophia@childrenshospice.org
Sally Sehring
ssehring@peds.ucsf.edu
Sandy Sentivany-Collins
Pediatric Pain Management/Palliative Care
Lucile Packard Children’s Hospital
Palo Alto, CA
ssentivanycollins@lpch.org
Nancy Shanks
namaste_nance@yahoo.com
Joyce Shefren, RN
Administrator
Pathways Kids
jshefren@pathwayshealth.org
Barbara Sourkes, PhD
Pediatric Palliative Director
Lucile Packard Children’s Hospital
Palo Alto, CA
bsourkes@stanford.edu
Shoshana Spielman, RN
Nurse Care Coordinator
Partnership for Children
Watsonville, CA
shoshana@childrenshospice.org
Alessandra Elisabetta Strada, Ph.D.
Psychology Fellow, Palliative Care and Hospice
Stanford University/Palo Alto Veteran Administration
Palo Alto, CA
alessandrastrada@aol.com
Gwynn B. Sullivan, RN, MSN
Director, Partner Programs and Services
National Hospice and Palliative Care Organization / Caring Connections
gsullivan@nhpco.org
Mindy Szelap
mszelap@lpch.org
Christy Torkildson, RN, MSN
Director of Education & Research; Doctoral Student
George Mark Children’s House/USCF School of Nursing
San Leandro, CA
torkc@sbcglobal.net
Claire Vesely, RN
Admissions Coordinator
George Mark Children’s House
San Leandro, CA
cvesely@georgemark.org
Lisa Walker-Visher
Valley Medical Center
San Jose, CA
lisa.walker-visher@hhs.co.santa-clara.ca.us
Sandee Wishon, RN, PNP
Hospice by the Bay
swishon@hospiceofthebay.org
Sarah Zaglifa Carle
sarah.carle@kp.org
Heidi Zeichick
heidiz@hospicecc.org